Brrrr

Its been so cold! The weather went form summer almost into winter. Its fall and its already spot out a few snow flurries. I'm having a really hard time with my P. Both my big toes are not only peeled off down to the soft tissue but there are more blisters now which means, yep, more peeling to come. I don't know if my skin can grow as fast as whats needed. I also have bad areas between my toes and around the base of them. The cent palm area of my feet are still peeling and now around the edges of both heels, blisters and peeling. My fingertips are also starting to show tiny blisters. Not as bad as my toes though thank goodness. My hands look fairly nice really. I cant complain about them. Just a few sore spots here and there with a blister here, peeling there.... I feel like I'm singing the 'Old Mac Donald' song lol I have one spot on my left thumb that is almost raw. Its the only place on my hands that is "bothering" me.

I have ointment I can put on my toes and feet. I just hate having to do that. I think sometimes it makes it worse. I put Vaseline on after showers and I do soaks about once a week with salts and oatmeal. I use Curel Ultra Healing lotion, omg I love this stuff. I keep socks on my feet all the time, including in bed although on occasion I'm able to not wear socks when my feet aren't grabbing the sheets and blankets constantly.

I had an EMG done on my feet and lower legs. Why didn't anyone tell me this is painful? lol Its not supposed to be. The Dr said that most people find it uncomfortable but that my nerves are more sensitive than most. He said that I have Small Fibro Neuropathy (I think that's what he said lol). Which is common with diabetics and is why I have constant burning and needle type pains in my feet. He also said that it amplifies the pain from my P so I'm getting a double whammy.

I started insulin. I was surprised how easy it is really. I get a little bit of stinging sometimes but giving myself the shots is much easier than I thought. You should have seen me the first time though lol it took me about 5 mins of holding the needle next to my skin before I actually pushed it in lol I'm a big chicken :) But I got over it and now its nothing at all. Been on it a couple of weeks and its bringing my numbers down slowly. Once they get my fasting numbers down they'll start trying to get my spikes down when I eat. Being a diabetic is rough. I wouldn't wish it on anyone.

Anyway, I got my husbands Christmas shopping done. I need to shop for thanksgiving dinner this week and then Ill be ready to put up lights this weekend on the house for Christmas. Lots of stuff to do and think of the next couple of months.

I hope everyone has a great week and a great Thanks Giving!

Hi, hello, how are ya?!

It's been a while, a very long while actually. Ok catching up here, we've moved, to mid Michigan, I'm not as stressed out now, I'm still having issues.

So for those who don't know, I'm diabetic and I have a few other health issues other than my PPPP. I also have neuropathy and thyroid disease, not to mention I'm plum crazy too *grin* So, the decision was made recently that I am going on insulin. Pills and diet, or lack of diet have failed me so this is the best choice now. I hadn't had any huge flares or breakouts in so long but recently my feet have been giving me problems. Well neuropathy and PPPP is just a horrible combination. My feet are peeling, but its my toes that are taking the brunt of the blisters this time. mostly the tips of my toes. I saw something somewhere that said this is a dangerous and rare type of PPPP but I cant find where I read it at and my derm is a moron and doesn't care long as she gets paid. Anyways, I'm trying to do soaks and then massage in Neosporin on the places its cracked or peeling to the meat, then I massage in Vaseline on the rest of my feet. I have one problematic spot on my right big toe. Its very raw and red but it doesn't hurt really on that spot. However, its one of those spots you know right away you have to keep an eye on it, especially with me being a diabetic.

I'm hoping that when I actually start my insulin that my body will be more in balance and my feet will calm down. I still get spots on my hands but its nothing like it was previously thank God. I get dime size or less spots of blisters that I only notice once they start turning brown or start peeling.

The cover to my camera took a dive, nice design over the batteries, latch broke from the stress of the battery springs. Oh joy, or I would take a pic of my toe.

All in all I say I'm not doing too bad. I keep my spirits up, try to not feel too down and I don't let this control my life. Happy happy joy joy! I hope you are all doing well and that this isn't keeping you down either!

Better days

Well I thought I would go ahead and post today even though I wasnt going to until next week. Ive been doing pretty good and I feel like the Celexa has really kicked in. Im not so stressed out now and today I can really tell its working because I can say today that I am happy :)

Now since starting the Celexa I was taken off Keflex. I was really worried what might happen especially since some say Celexa caused their P or caused them to have flares. I was scared! Ive been on it now about 3 weeks give or take and I have to say, I think my skin is getting better. Ill post some pictures I took the other day. My feet arent the greatest. My right foot in particular is pretty rough. Its p[ainful too which doesnt help. I dont dare say anything on the NPF website because the last time I put pictures up there were a couple of people who said hurtful things to me so now Im afraid to. Anyway, heres some pictures from a few days ago.

Taken 9/8/09

 My hands are doing better but Ive been doing stuff today so theyre all red Ill take pictures tomorrow when I havent irritated them so you can see what they look like right now.

Alright, well thats all I have to say at the moment! I hope youre all doing well :)

Celexa

Well my hands are about the same, they aren't too bad, I do have some tender spots however and they are dry and peeling like crazy. Last Friday I went to the new PCP I have and she put me on Celexa because I haven't been sleeping and have been having panic attacks and mild depression. Well I didn't know at this point that Celexa has been known to cause psoriasis and to cause flare ups. *BIG SIGH* But since starting the Celexa I have been sleeping and I hadn't gotten more than an hour of sleep at a time for the two weeks prior so I am so thankful that the Celexa seems to have helped this problem. Its nice being able to sleep. When you get sleep its like seeing the world in color instead of black and white. Ill have to keep an eye on my PPPP very closely though. If I flare up Ill know it must be the Celexa doing it or at least it may be involved. If that happens then Ill have to go back to my PCP and ask her to change my antidepressant to something else and pray that doesn't also cause a flare. I have a spot on the bottom of my foot that has been extremely sore and if that doesn't get better Ill show her the spot. I am thinking of bringing up that my feet have been very very painful and ask if she can either check for arthritis or refer me to a rheumy. I hope I don't have PA.

Alright, I have things to do, hope you all have a wonderful P free day!

Gah Im in a flare!

Before I start, I didn't notice until today there was no "Subscribe to" button on my blog. You should be able to subscribe now and Ill subscribe back on you're as well.

Ok, so I don't think it was the chlorine in the pool. I'm thinking it is the fact that the doctor who prescribed me the Keflex was on vacation and I couldn't get a prescription refill until Friday. I have been off Keflex for two weeks. I'm on them again now though. I need to call my derm because I'm not sure that the topicals are doing any good at all. Maybe she will have me try another one, I don't know, I don't have much faith in her to begin with.

Ok so I took pictures the other day of the newest flare up. I think its going to be more mild this time, but here are the first ones.

Taken 8/22/09



And since I seem to have left my camera at my aunts house, those are the only ones I'm posting today lol I am using my topicals I did last night and the night before, I don't think I will have to use them tonight, but Ill decide closer to bedtime. My feet might get the topicals and not my hands because my feet are really bothering me. My right foot in particular is hurting pretty bad today.

So that's the update for now, I will try to get my camera and post more pictures tomorrow for you.

Hey can everyone tell me what you think has been the most beneficial thing you have done for yourself concerning your P.

Have a great day!